Fundraising target young girls Boiling Springs patients with rare diseases - Spartanburg Herald Journal

Published: Friday, February 18, 2011 at 15.03 clock
Last Updated: Thursday, February 17, 2011 at 01.09 clock

An event-music benefit Saturday in favor of a young girl of Boiling Springs with a rare disease.

Addy Grace McCraw is only 20 months and the survival needs intensive medical treatment in the past, their childhood. Addy MPS I, better known as Hurler syndrome known.

The disease, caused by a missing enzyme to break down sugar, affects the bones and organs, eyesight and hearing. It is a rare disease that occurs worldwide in about 100,000 births. There is no cure, but treatment can extend life Addy.

Addy and her parents, Boiling Springs residents Heath and Amber McCraw have at Duke University Medical Center since December Addy where chemotherapy was completed and a stem cell transplant.

"Their hope is to raise it from its woe to stop the brain so they can participate in the public schools and feel no different," said a family friend and fundraiser organizer Johnnie Lynn Crosby. "It is incredible, and all treatments are good. It is a difficult time in the coming weeks, the stem cell transplant have to start working and growing in their bodies. "

Fundraising, "said Crosby, will assist families with financial need, while they are away from home. Although physicians should monitor and treat conditions continue Addy, family, money to rent an apartment in North Carolina and continue to pay their mortgage in Boiling Springs to find, "said Crosby. All proceeds from Saturday will benefit the family McCraw.

The event will feature bands The Band Springs, Lake Bowen Baptist Church Orchestra, coins and Josh Brannon Band. There will be a silent auction for terms such as electric guitar, playing golf, gym memberships and music event. T-shirts and wristbands in honor Addy is also available.

19.00 The clock services in Boiling Springs ninth grade campus, 3655 Boiling Springs Road, Boiling Springs location. Tickets are $ 15 presale and $ 20 at the door. are children aged 10 and under free.

Also on April 5 is the Pizza Inn at 2225 E. Main St. give advice and 10 percent of all sales to Addy.

Crosby asked that people who can not attend any event held Addy and McCraw family in their prayers or make a donation to a savings account Addy are the names of the founders Credit Union in Boiling Springs.

For sales, please call 864-497-7458 to Crosby, Brooke McCombs at 864-327-5689 or 864-529-2626 in Fallon Ownbey.